Very Hard Day

Day 1 is over thank goodness. What a little trooper Ani is. When we got into the room Eebbee came to life she was so happy to have her new Eebbee doll then things started to roll first was the PICC placement I asked for a sedative to help her through this procedure and I am so glad I did. She was quite a funny on verset (sp?) saying helloooooooooo to everyone she saw and laughing uncontrollably. The child life team is wonderful and we brought the Eebbee videos into the OR room and this really helped. Unfortunately she came down just in time for the G-tube to be put in. I asked for it not to be done in the room to keep the room a safe place but it was not possible. She was quite upset about having something in her nose they had to put arm restraints on her and she was not able to suck her thumb. Not good. She fell asleep but was awakened by Dr Levitt and was not very happy about that and cried so hard she cried out her g-tube and we had to have that procedure all over again. My heart felt like it was being ripped out of my chest. I tried hard to not let her see me cry. Then it was down stairs again for the contrast enema. Poor little thing but I was so proud of her. It was a rough night as the clean out is almost done and it is going on 7 am. Docs should be here soon for morning rounds so I better sign off her are some pics of the good moments of the day.